Run for Ben

Ben Stokman is just a little kid who was diagnosed with an extremely rare form of histiocytosis called JXG (Juvenile Xanthogranuloma) when he was five months old. Ben has multisystem involvement including his brain, skin, bones, lungs and kidneys. Ben has touched many people's hearts. Despite all his hospital time and all the medication, he is always ready to give you a smile and a giggle. On November 22nd you can help Valley families in their courageous fight against histiocytosis by participating in the 2nd Annual Ben's Run. Ben's Run includes fun activities for all ages and abilities!

Histiocytosis is a rare blood disease that is caused by an excess of a white blood cell called a histiocyte. These histiocytes cluster together and can attack the skin, bones, lungs, liver, spleen, gums, ears, eyes, bone marrow and the central nervous system. The disease can range from limited involvement that spontaneously regresses to progressive multi-organ involvement that can be chronic and debilitating. This disease can be fatal.

In some ways, histiocytosis is similar to cancer. The vast majority of people diagnosed with histiocytosis are children under the age of ten. The cause is unknown, as is the best form of treatment, and a cure. Many children receive chemotherapy, sometimes for many years.

This disease is often called an orphan disease because it is rare and under-funded. Your donations and registration proceeds directly benefit the Histiocytosis Association of America and can make a huge difference for Ben and others affected by this disease. Donations are 100% tax deductible.

Find out more about Ben's Run here!